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uva.nl
Amsterdam Institute for Social Science Research (AISSR) AISSR

Dr. M.H. (Marjolein) Gysels

Faculty of Social and Behavioural Sciences
Programme group: Anthropology of Health, Care and the Body
Photographer: Bram Belloni
Visiting address
  • Nieuwe Achtergracht 166
Postal address
  • Postbus 15509
    1001 NA Amsterdam
Contact details
  • Publications

    2018

    • Lemos Dekker, N., Gysels, M., & van der Steen, J. T. (2018). Professional caregivers' experiences with the Liverpool Care Pathway in dementia: An ethnographic study in a Dutch nursing home. Palliative & Supportive Care, 16(4), 479-486. Advance online publication. https://doi.org/10.1017/S1478951517000645 [details]

    2017

    • Achterberg, W. P., & Gysels, M. (2017). Pain in Dementia: Cross-Cultural Considerations. In S. Lautenbacher, & S. J. Gibson (Eds.), Pain in Dementia (pp. 331-344). Seattle: IASP Press. [details]
    • West, E., Stuckelberger, A., Pautex, S., Staaks, J., & Gysels, M. (2017). Operationalising ethical challenges in dementia research: a systematic review of current evidence. Age and Ageing, 46(4), 678-687. Advance online publication. https://doi.org/10.1093/ageing/afw250 [details]

    2016

    • Gysels, M. (2016). Art and Dementia: Inclusive and Super-Diverse. In S. Trienekens, & C. Groot (Eds.), Age included: On Music, Generations, Diversity and Freedom (pp. 46-51). Amsterdam: SWP. [details]
    • Gysels, M. (2016). Cultural issues on palliative care for older people. In L. van den Block, G. Albers, S. Martins Pereira, B. Onwuteaka-Philipsen, R. Pasman, & L. Deliens (Eds.), Palliative Care for Older People: A Public Health Perspective (pp. 144-155). Oxford: Oxford University Press. [details]
    • Gysels, M., & Higginson, I. J. (2016). Facing up to breathlessness. In L. Manderson, E. Cartwright, & A. Hardon (Eds.), The Routledge Handbook of Medical Anthropology (pp. 155-163). (Routledge handbooks). Routledge. https://doi.org/10.4324/9781315794198 [details]
    • Gysels, M., Reilly, C. C., Jolley, C. J., Pannell, C., Spoorendonk, F., Moxham, J., Bausewein, C., & Higginson, I. J. (2016). Dignity through integrated symptom management: Lessons from the Breathlessness Support Service. Journal of Pain and Symptom Management, 52(4), 515-524. https://doi.org/10.1016/j.jpainsymman.2016.04.010 [details]
    • Schildman, J., Nadolny, S., Wäscher, S., Gysels, M., Vollmann, J., & Bausewein, C. (2016). Clinical ethics support services (CESS) as complex intervention: Preliminary findings of a conceptual analysis and possible implications for outcomes research. Bioethica Forum, 9(2), 90-93. http://www.bioethica-forum.ch/docs/16_2/09_Schildmann_BF9_2.pdf [details]
    • Simon, S. T., Weingärtner, V., Higginson, I. J., Benalia, H., Gysels, M., Murtagh, F. E. M., Spicer, J., Linde, P., Voltz, R., & Bausewein, C. (2016). 'I Can Breathe Again!' Patients' Self-Management Strategies for Episodic Breathlessness in Advanced Disease, Derived from Qualitative Interviews. Journal of Pain and Symptom Management, 52(2), 228-234. Advance online publication. https://doi.org/10.1016/j.jpainsymman.2016.02.016 [details]

    2015

    • Dunger, C., Higginson, I. J., Gysels, M., Booth, S., Simon, S. T., & Bausewein, C. (2015). Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients. Palliative & Supportive Care, 13(2), 229-237. https://doi.org/10.1017/S147895151300120X [details]
    • Gysels, M., Johnston, B., Bausewein, C., Petkova, H., & Murtagh, F. E. M. (2015). What influences the place of care and death in people with advanced dementia? European Journal of Palliative Care, 22(2), 58-63. [details]
    • Gysels, M., Reilly, C. C., Jolley, C. J., Pannell, C., Spoorendonck, F., Bellas, H., Moxham, J., Higginson, I. J., & Bausewein, C. (2015). How does a new breathlessness support service affect patients? The European Respiratory Journal, 46, 1515-1518. https://doi.org/10.1183/13993003.00751-2015 [details]

    2014

    • Calanzani, N., Moens, K., Cohen, J., Higginson, I. J., Harding, R., Deliens, L., Toscani, F., Ferreira, P. L., Bausewein, C., Daveson, B. A., Gysels, M., Ceulemans, L., & Gomes, B. (2014). Choosing care homes as the least preferred place to die: a cross-national survey of public preferences in seven European countries. BMC Palliative Care, 13, Article 48. https://doi.org/10.1186/1472-684X-13-48 [details]
    • Daveson, B. A., Alonso, J. P., Calanzani, N., Ramsenthaler, C., Gysels, M., Antunes, B., Moens, K., Groeneveld, E. I., Albers, G., Finetti, S., Pettenati, F., Bausewein, C., Higginson, I. J., Harding, R., Deliens, L., Toscani, F., Ferreira, P. L., Ceulemans, L., & Gomes, B. (2014). Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe. European Journal of Public Health, 24(3), 521-527. Advance online publication. https://doi.org/10.1093/eurpub/ckt029 [details]
    • Higginson, I. J., Bausewein, C., Reilly, C. C., Gao, W., Gysels, M., Dzingina, M., McCrone, P., Booth, S., Jolley, C. J., & Moxham, J. (2014). An integrated palliative and respiratory care for patients with advanced disease and refractory breathlessness: a randomised controlled trial. The Lancet Respiratory Medicine, 2(12), 979-987. Advance online publication. https://doi.org/10.1016/S2213-2600(14)70226-7 [details]
    • Higginson, I. J., Gomes, B., Calanzani, N., Gao, W., Bausewein, C., Daveson, B. A., Deliens, L., Ferreira, P. L., Toscani, F., Gysels, M., Ceulemans, L., Simon, S. T., Cohen, J., & Harding, R. (2014). Priorities for treatment, care and information if faced with serious illness: a comparative population-based survey in seven European countries. Palliative medicine, 28(2), 101-110. https://doi.org/10.1177/0269216313488989 [details]
    • Selman, L., Speck, P., Barfield, R. C., Gysels, M., Higginson, I. J., & Harding, R. (2014). Holistic models for end of life care: establishing the place of culture. Progress in palliative care, 22(2), 80-87. Advance online publication. https://doi.org/10.1179/1743291X13Y.0000000063 [details]

    2013

    • Andrew, E. V. W., Cohen, J., Evans, N., Meñaca, A., Harding, R., Higginson, I., Pool, R., & Gysels, M. (2013). Social-cultural factors in end-of-life care in Belgium: a scoping of the research literature. Palliative medicine, 27(2), 131-143. https://doi.org/10.1177/0269216311429619 [details]
    • Bausewein, C., Calanzani, N., Daveson, B. A., Simon, S. T., Ferreira, P. L., Higginson, I. J., Bechinger-English, D., Deliens, L., Gysels, M., Toscani, F., Ceulemans, L., Harding, R., & Gomes, B. (2013). ‘Burden to others’ as a public concern in advanced cancer: a comparative survey in seven European countries. BMC Cancer, 13, 105. Article 105. https://doi.org/10.1186/1471-2407-13-105 [details]
    • Daveson, B. A., Bausewein, C., Murtagh, F. E. M., Calanzani, N., Higginson, I. J., Harding, R., Cohen, J., Simon, S. T., Deliens, L., Bechinger-English, D., Hall, S., Koffman, J., Lopes Ferreira, P., Toscani, F., Gysels, M., Ceulemans, L., Haugen, D. F., & Gomes, B. (2013). To be involved or not to be involved: a survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe. Palliative medicine, 27(5), 418-427. https://doi.org/10.1177/0269216312471883 [details]
    • Evans, C. J., Benalia, H., Preston, N. J., Grande, G., Gysels, M., Short, V., Daveson, B. A., Bausewein, C., Todd, C., & Higginson, I. J. (2013). The selection and use of outcome measures in palliative and end-of-life care research: the MORECare International Consensus Workshop. Journal of Pain and Symptom Management, 46(6), 925-937. https://doi.org/10.1016/j.jpainsymman.2013.01.010 [details]
    • Gomes, B., Calanzani, N., Gysels, M., Hall, S., & Higginson, I. J. (2013). Heterogeneity and changes in preferences for dying at home: a systematic review. BMC Palliative Care, 12, 7. Article 7. https://doi.org/10.1186/1472-684X-12-7 [details]
    • Gysels, M., Evans, C. J., Lewis, P., Speck, P., Benalia, H., Preston, N. J., Grande, G. E., Short, V., Owen-Jones, E., Todd, C. J., & Higginson, I. J. (2013). MORECare research methods guidance development: recommendations for ethical issues in palliative and end-of-life care research. Palliative medicine, 27(10), 908-917. https://doi.org/10.1177/0269216313488018 [details]
    • Gysels, M., Evans, N., Meñaca, A., Higginson, I. J., Harding, R., & Pool, R. (2013). Diversity in defining end of life care: an obstacle or the way forward? PLoS ONE, 8(7), Article e68002. https://doi.org/10.1371/journal.pone.0068002 [details]
    • Harding, R., Simms, V., Calanzani, N., Higginson, I. J., Hall, S., Gysels, M., Meñaca, A., Bausewein, C., Deliens, L., Ferreira, P., Toscani, F., Daveson, B. A., Ceulemans, L., & Gomes, B. (2013). If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis. Psycho-Oncology, 22(10), 2298-2305. https://doi.org/10.1002/pon.3283
    • Higginson, I. J., Evans, C. J., Grande, G., Preston, N., Morgan, M., MCrone, P., Lewis, P., Fayers, P., Harding, R., Hotopf, M., Murray, S. A., Benalia, H., Gysels, M., Farquhar, M., & Todd, C. (2013). Evaluating complex interventions in end of life care: the MORECare Statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews. BMC Medicine, 11, Article 111. https://doi.org/10.1186/1741-7015-11-111 [details]
    • Malik, F. A., Gysels, M., & Higginson, I. J. (2013). Living with breathlessness: a survey of caregivers of breathless patients with lung cancer or heart failure. Palliative medicine, 27(7), 647-656. https://doi.org/10.1177/0269216313488812 [details]
    • Selman, L., Speck, P., Gysels, M., Agupio, G., Dinat, N., Downing, J., Gwyther, L., Mashao, T., Mmoledi, K., Moll, T., Mpanga Sebuyira, L., Ikin, B., Higginson, I. J., & Harding, R. (2013). ‘Peace’ and ‘life worthwhile’ as measures of spiritual well-being in African palliative care: a mixed-methods study. Health and Quality of Life Outcomes, 11(1), 94. Article 94. https://doi.org/10.1186/1477-7525-11-94 [details]
    • Simon, S. T., Higginson, I. J., Benalia, H., Gysels, M., Murtagh, F. E. M., Spicer, J., & Bausewein, C. (2013). Episodes of breathlessness: types and patterns: a qualitative study exploring experiences of patients with advanced diseases. Palliative medicine, 27(6), 524-532. https://doi.org/10.1177/0269216313480255 [details]
    • Simon, S. T., Higginson, I. J., Benalia, H., Gysels, M., Murtagh, F. E. M., Spicer, J., & Bausewein, C. (2013). Episodic and continuous breathlessness: a new categorization of breathlessness. Journal of Pain and Symptom Management, 45(6), 1019-1029. https://doi.org/10.1016/j.jpainsymman.2012.06.008

    2012

    • Evans, N., Bausewein, C., Meñaca, A., Andrew, E. V. W., Higginson, I. J., Harding, R., Pool, R., & Gysels, M. (2012). A critical review of advance directives in Germany: attitudes, use and healthcare professionals’ compliance. Patient Education and Counseling, 87(3), 277-288. https://doi.org/10.1016/j.pec.2011.10.004 [details]
    • Evans, N., Meñaca, A., Andrew, E. V. W., Koffman, J., Harding, R., Higginson, I. J., Pool, R., & Gysels, M. (2012). Systematic review of the primary research on minority ethnic groups and end-of-life care from the United Kingdom. Journal of Pain and Symptom Management, 43(2), 261-286. https://doi.org/10.1016/j.jpainsymman.2011.04.012 [details]
    • Evans, N., Meñaca, A., Koffman, J., Harding, R., Higginson, I. J., Pool, R., & Gysels, M. (2012). Cultural competence in end-of-life care: terms, definitions, and conceptual models from the British literature. Journal of Palliative Medicine, 15(7), 812-820. https://doi.org/10.1089/jpm.2011.0526 [details]
    • Gomes, B., Higginson, I. J., Calanzani, N., Cohen, J., Deliens, L., Daveson, B. A., Bechinger-English, D., Bausewein, C., Ferreira, P. L., Toscani, F., Meñaca, A., Gysels, M., Ceulemans, L., Simon, S. T., Pasman, H. R. W., Albers, G., Hall, S., Murtagh, F. E. M., Haugen, D. F., ... Harding, R. (2012). Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. Annals of Oncology, 23(8), 2006-2015. https://doi.org/10.1093/annonc/mdr602
    • Gysels, M. H., Evans, C., & Higginson, I. J. (2012). Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature. BMC Medical Research Methodology, 12, Article 123. https://doi.org/10.1186/1471-2288-12-123
    • Gysels, M., Evans, N., Meñaca, A., Andrew, E. V. W., Bausewein, C., Gastmans, C., Gómez-Batiste, X., Gunaratnam, Y., Husebø, S., Toscani, F., Higginson, I. J., Harding, R., & Pool, R. (2012). Culture is a priority for research in end-of-life care in Europe: a research agenda. Journal of Pain and Symptom Management, 44(2), 285-294. https://doi.org/10.1016/j.jpainsymman.2011.09.013 [details]
    • Gysels, M., Evans, N., Meñaca, A., Andrew, E., Toscani, F., Finetti, S., Pasman, H. R., Higginson, I., Harding, R., & Pool, R. (2012). Culture and end of life care: a scoping exercise in seven European countries. PLoS ONE, 7(4), Article e34188. https://doi.org/10.1371/journal.pone.0034188 [details]
    • Meñaca, A., Evans, N., Andrew, E. V. W., Toscani, F., Finetti, S., Gómez-Batiste, X., Higginson, I. J., Harding, R., Pool, R., & Gysels, M. (2012). End-of-life care across Southern Europe: a critical review of cultural similarities and differences between Italy, Spain and Portugal. Critical Reviews in Oncology/Hematology, 82(3), 387-401. https://doi.org/10.1016/j.critrevonc.2011.06.002 [details]
    • Simon, S. T., Higginson, I. J., Harding, R., Daveson, B. A., Gysels, M., Deliens, L., Echteld, M. A., Radbruch, L., Toscani, F., Krzyzanowski, D. M., Costantini, M., Downing, J., Ferreira, P. L., Benalia, A., & Bausewein, C. (2012). Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care. Supportive Care in Cancer, 20(7), 1573-1578. https://doi.org/10.1007/s00520-012-1436-5

    2011

    • Evans, N., Meñaca, A., Andrew, E. V. W., Koffman, J., Harding, R., Higginson, I. J., Pool, R., & Gysels, M. (2011). Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy. BMC Public Health, 11, Article 141. https://doi.org/10.1186/1472-6963-11-141 [details]
    • Gysels, M. H., & Higginson, I. J. (2011). The lived experience of breathlessness and its implications for care: a qualitative comparison in cancer, COPD, heart failure and MND. BMC Palliative Care, 10, Article 15. https://doi.org/10.1186/1472-684X-10-15
    • Gysels, M., Pell, C., Straus, L., & Pool, R. (2011). End of life care in sub-Saharan Africa: a systematic review of the qualitative literature. BMC Palliative Care, 10, Article 6. https://doi.org/10.1186/1472-684X-10-6 [details]
    • Pool, R., Pell, C., Kaunda, B. N., Mathanga, D., & Gysels, M. (2011). Breastfeeding, vertical disease transmission and the volition of medicines in Malawi. In P. Liamputtong (Ed.), Infant feeding practices: a cross-cultural perspective (pp. 277-287). Springer. https://doi.org/10.1007/978-1-4419-6873-9_17 [details]
    • Posada, E., Pell, C., Angulo, N., Pinazo, M. J., Gimeno, F., Elizalde, I., Gysels, M., Muñoz, J., Pool, R., & Gascón, J. (2011). Bolivian migrants with Chagas disease in Barcelona, Spain: a qualitative study of dietary changes and digestive problems. International Health, 3(4), 289-294. https://doi.org/10.1016/j.inhe.2011.09.005 [details]
    • Selman, L., Harding, R., Gysels, M., Speck, P., & Higginson, I. J. (2011). The measurement of spirituality in palliative care and the content of tools validated cross-culturally: a systematic review. Journal of Pain and Symptom Management, 41(4), 728-753. https://doi.org/10.1016/j.jpainsymman.2010.06.023
    • Selman, L., Siegert, R., Harding, R., Gysels, M., Speck, P., & Higginson, I. J. (2011). A psychometric evaluation of measures of spirituality validated in culturally diverse palliative care populations. Journal of Pain and Symptom Management, 42(4), 604-622. https://doi.org/10.1016/j.jpainsymman.2011.01.015
    • White, P., White, S., Edmonds, P., Gysels, M., Moxham, J., Seed, P., & Shipman, C. (2011). Palliative care or end-of-life care in advanced chronic obstructive pulmonary disease: A prospective community survey. British Journal of General Practice, 61(587), e362-e370. https://doi.org/10.3399/bjgp11X578043

    2010

    • Bausewein, C., Booth, S., Gysels, M., Kühnbach, R., & Higginson, I. J. (2010). Effectiveness of a hand-held fan for breathlessness: a randomised phase II trial. BMC Palliative Care, 9, Article 22. https://doi.org/10.1186/1472-684X-9-22
    • Bausewein, C., Booth, S., Gysels, M., Kühnbach, R., Haberland, B., & Higginson, I. J. (2010). Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: results from a longitudinal study. Palliative medicine, 24(8), 777-786. https://doi.org/10.1177/0269216310378785
    • Bausewein, C., Booth, S., Gysels, M., Kühnbach, R., Haberland, B., & Higginson, I. J. (2010). Understanding breathlessness: cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer. Journal of Palliative Medicine, 13(9), 1109-1118. https://doi.org/10.1089/jpm.2010.0068
    • Gysels, M., & Higginson, I. J. (2010). The experience of breathlessness: the social course of chronic obstructive pulmonary disease. Journal of Pain and Symptom Management, 39(3), 555-563. https://doi.org/10.1016/j.jpainsymman.2009.08.009
    • Pell, C., Straus, L., Phuanukoonnon, S., Lupiwa, S., Mueller, I., Senn, N., Siba, P., Gysels, M., & Pool, R. (2010). Community response to intermittent preventive treatment of malaria in infants (IPTi) in Papua New Guinea. Malaria Journal, 9, Article 369. https://doi.org/10.1186/1475-2875-9-369 [details]

    2009

    • Gysels, M. H., & Higginson, I. J. (2009). Caring for a person in advanced illness and suffering from breathlessness at home: threats and resources. Palliative & Supportive Care, 7(2), 153-162. https://doi.org/10.1017/S1478951509000200
    • Gysels, M. H., & Higginson, I. J. (2009). Self-management for breathlessness in COPD: the role of pulmonary rehabilitation. Chronic Respiratory Disease, 6(3), 133-140. https://doi.org/10.1177/1479972309102810
    • Gysels, M., & Higginson, I. J. (2009). Reconciling employment with caring for a husband with an advanced illness. BMC Health Services Research, 9, Article 216. https://doi.org/10.1186/1472-6963-9-216
    • Gysels, M., Pell, C., Mathanga, D. P., Adongo, P., Odhiambo, F., Gosling, R., Akweongo, P., Mwangi, R., Okello, G., Mangesho, P., Slutsker, L., Kremsner, P. G., Grobusch, M. P., Hamel, M. J., Newman, R. D., & Pool, R. (2009). Community response to intermittent preventive treatment of malaria in infants (IPTi) delivered through the expanded programme of immunization in five African settings. Malaria Journal, 8, Article 191. https://doi.org/10.1186/1475-2875-8-191 [details]
    • Schwarz, N. G., Gysels, M., Pell, C., Gabor, J., Schlie, M., Issifou, S., Lell, B., Kremsner, P. G., Grobusch, M. P., & Pool, R. (2009). Reasons for non-adherence to vaccination at mother and child care clinics (MCCs) in Lambaréné, Gabon. Vaccine, 27(39), 5371-5375. https://doi.org/10.1016/j.vaccine.2009.06.100 [details]
    • Shipman, C., White, S., Gysels, M., & White, P. (2009). Access to care in advanced COPD: factors that influence contact with general practice services. Primary Care Respiratory Journal, 18(4), 273-278. https://doi.org/10.4104/pcrj.2009.00013

    2008

    • Bausewein, C., Booth, S., Gysels, M., & Higginson, I. J. (2008). Non-pharmacological interventions for breathlessness in advanced stages of malignant and non-malignant diseases. - Version 2. Cochrane Database of Systematic Reviews, 2008(2), Article CD005623. https://doi.org/10.1002/14651858.CD005623.pub2
    • Gysels, M. H., Shipman, C., & Higginson, I. J. (2008). "I will do it if it will help others:" motivations among patients taking part in qualitative studies in palliative care. Journal of Pain and Symptom Management, 35(4), 347-355. https://doi.org/10.1016/j.jpainsymman.2007.05.012
    • Gysels, M., & Higginson, I. J. (2008). Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness. Journal of Pain and Symptom Management, 36(5), 451-460. https://doi.org/10.1016/j.jpainsymman.2007.11.008
    • Gysels, M., Shipman, C., & Higginson, I. J. (2008). Is the qualitative research interview an acceptable medium for research with palliative care patients and carers? BMC Medical Ethics, 9, Article 7. https://doi.org/10.1186/1472-6939-9-7
    • Shipman, C., Gysels, M., White, P., Worth, A., Murray, S. A., Barclay, S., Forest, S., Shepherd, J., Dale, J., Dewar, S., Peters, M., White, S., Richardson, A., Lorenz, K., Koffman, J., & Higginson, I. J. (2008). Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups. BMJ : British medical journal, 337, Article a1720. https://doi.org/10.1136/bmj.a1720

    2007

    • Bausewein, C., Farquhar, M., Booth, S., Gysels, M., & Higginson, I. J. (2007). Measurement of breathlessness in advanced disease: a systematic review. Respiratory medicine, 101(3), 399-410. https://doi.org/10.1016/j.rmed.2006.07.003
    • Becker, G., Xander, C. J., Blum, H. E., Lutterbach, J., Momm, F., Gysels, M., & Higginson, I. J. (2007). Do religious or spiritual beliefs influence bereavement? A systematic review. Palliative medicine, 21(3), 207-217. https://doi.org/10.1177/0269216307077327
    • Gysels, M. H., & Higginson, I. J. (2007). Systematic reviews. In J. M. Addington-Hall, E. Bruera, I. J. Higginson, & S. Payne (Eds.), Research Methods in Palliative Care (pp. 115-138). Oxford: Oxford University Press.
    • Gysels, M., & Higginson, I. J. (2007). Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomised trials. Supportive Care in Cancer, 15(1), 7-20. https://doi.org/10.1007/s00520-006-0112-z
    • Gysels, M., Bausewein, C., & Higginson, I. J. (2007). Experiences of breathlessness: a systematic review of the qualitative literature. Palliative & Supportive Care, 5(3), 281-302. https://doi.org/10.1017/S1478951507000454
    • Gysels, M., Richardson, A., & Higginson, I. J. (2007). Does the patient-held record improve continuity and related outcomes in cancer care: a systematic review. Health Expectations, 10(1), 75-91. https://doi.org/10.1111/j.1369-7625.2006.00415.x

    2006

    • Bausewein, C., Farquhar, M., Booth, S., Gysels, M. H., & Higginson, I. J. (2006). Messung von Atemnot in der Palliativmedizin: eine systematische Übersicht. Zeitschrift für Palliativmedizin, 7, 3-6. https://doi.org/10.1055/s-2006-954159
    • Booth, S., Farquhar, M., Gysels, M., Bausewein, C., & Higginson, I. J. (2006). The impact of a breathlessness intervention service (BIS) on the lives of patients with intractable dyspnea: A qualitative phase 1 study. Palliative & Supportive Care, 4(3), 287-293. https://doi.org/10.1017/S1478951506060366

    2005

    • Gysels, M. H., Richardson, A., & Higginson, I. J. (2005). Communication training for health professionals who care for patients with cancer: a systematic review of training methods. Supportive Care in Cancer, 13(6), 356-366. https://doi.org/10.1007/s00520-004-0732-0
    • Gysels, M., Pool, R., & Nyanzi, S. (2005). The adventures of the Randy Professor and Angela the Sugar Mummy: Sex in fictional serials in Ugandan popular magazines. AIDS Care, 17(8), 967-977. https://doi.org/10.1080/09540120500100924

    2004

    • Gysels, M. H., Hughes, R., Aspinal, F., Addington-Hall, J. M., & Higginson, I. J. (2004). What methods do stakeholders prefer for feeding back performance data: a qualitative study in palliative care. International Journal for Quality in Health Care, 16(5), 375-381. https://doi.org/10.1093/intqhc/mzh067
    • Gysels, M. H., Richardson, A., & Higginson, I. J. (2004). Communication training for health professionals who care for patients with cancer: a systematic review of effectiveness. Supportive Care in Cancer, 12(10), 692-700. https://doi.org/10.1007/s00520-004-0666-6

    2002

    • Gysels, M., Pool, R., & Nnalusiba, B. (2002). Women who sell sex in a Ugandan trading town: life histories, survival strategies and risk. Social Science & Medicine, 54(2), 179-192. https://doi.org/10.1016/S0277-9536(01)00027-2

    2001

    • Gysels, M., Pool, R., & Bwanika, K. (2001). Truck drivers, middlemen and commercial sex workers: AIDS and the mediation of sex in south west Uganda. AIDS Care, 13(3), 373-385. https://doi.org/10.1080/09540120120044026

    1992

    2012

    • Murtagh, F. E. M., Bausewein, C., Petkova, H., Sleeman, K. E., Dodd, R. H., Gysels, M., Johnston, B., Murray, S., Banerjee, S., Shipman, C., Hansford, P., Wakefield, D., Gomes, B., & Higginson, I. J. (2012). Understanding place of death for patients with non malignant conditions: a systematic literature review. National Institute for Health Research, Service Delivery and Organisation Programme. http://www.nets.nihr.ac.uk/__data/assets/pdf_file/0007/85084/FR-08-1813-257.pdf

    2007

    • Gysels, M. H., Higginson, I. J., & White, P. (Accepted/In press). Scoping exercise on generalist services for adults at the end of life: research, knowledge, policy and future research needs. Report 2: The literature scoping. Report for the NIHR Service Delivery and Organisation Programme. London: NCCSDO.
    • Higginson, I. J., Shipman, C., & Gysels, M. H. (Accepted/In press). Scoping exercise on generalist services for adults at the end of life: research, knowledge, policy and future research needs. Report 1: Overview and recommendations for future research in generalist end of life care. Report for the NIHR Service Delivery and Organisation Programme. London: NCCSDO.
    • Shipman, C., Higginson, I. J., & Gysels, M. H. (2007). Scoping exercise on generalist services for adults at the end of life: research, knowledge, policy and future research needs. Report 3: The consultation. Report for the NIHR Service Delivery and Organisation Programme. London: NCCSDO.

    2004

    2001

    • Gysels, M. H., Mgalla, Z., & Wambura, L. (2001). 'No child to send': context and consequences of female infertility in northwest Tanzania. In T. Boerma, & Z. Mgalla (Eds.), Women and infertility in sub-Saharan Africa: a multi-disciplinary perspective (pp. 203-221). Amsterdam: KIT publishers.

    2015

    • Daveson, B. A., Smith, M., Yi, D., McCrone, P., Grande, G., Todd, C., Gysels, M., Costantini, M., Murtagh, F. E., Higginson, I. J., & Evans, C. J. (2015). The effectiveness and cost-effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers. Cochrane Database of Systematic Reviews, 2015(3), Article CD011619. https://doi.org/10.1002/14651858.CD011619 [details]
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